The Annual General Meeting (AGM) for Citizens’ Alliance of Nova Scotia will take place on Saturday October 25th at 23 Inglis Place in downtown Truro, Nova Scotia from 1:00PM to 2:00PM. In-person space is limited but we will be live-streaming the AGM so please tune in if you can! The live-stream link can be accessed here shortly before the start of the AGM.
For simplicity’s sake, let’s just say that in clinical research/clinical trials, you, as a participant, will receive the Cadillac of care: no wait times for imaging, diagnostic tests, prompt medical attention if you experience what is referred to as an Adverse Event (AE). This highlights the sad reality that in Nova Scotia with a deeply challenged health care system (shortage of medical personnel, equipment, IT infrastructure), your best bet to receive top-notch care, may be enrolling in a clinical trial.
The conclusion to the Atlantic portion of the National Citizens Inquiry occurred on March 18th 2023, held at the Best Western Glengarry in Truro, Nova Scotia. Though the gallery started at around 50% capacity in the morning, it was abuzz with excitement, and reached almost 100% capacity by the end of the day. Online stats for the day indicated more than 9000 views across social media platforms, while the total impressions for the event on Twitter exceeded 1.1 million: the event’s Twitter page received a 7% percent engagement rate, which is far higher than the average Twitter engagement rate of 0.05%.
The National Citizen’s Inquiry kicked off on March 16 2023, with the Atlantic portion of the Inquiry being held in Truro, Nova Scotia. The gallery room at the Best Western Glengarry was full all day, with people coming in from all across the Atlantic provinces, and with roughly 11,000 virtual attendees tuning in over the course of the day through various social media and video streaming platforms.
How have I been? Well…
I suppose it starts with the Freedom Convoy in Ottawa. It was an emotional few weeks, and it culminated in a violent quelling of a peaceful protest, which was perfectly in line with the Canadian Charter of Rights and Freedoms Section 2(c) (the fundamental freedom of peaceful assembly). It was legal to participate in, and fund, such a gathering until the government decided to pass orders and measures which made it illegal.
Interestingly PHIA already has provisions – 31(l) and 38(1)(g) – which allow for the Minister to collect personal health information for the purpose of planning and management of the health system. It also already contains provisions for the Minister to collect that information for the purposes of creating or maintaining an electronic health record at 31(o). The difference now, however, seems to be that custodians will no longer be able to refuse to disclose your personal health information to the government.
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